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STORIES OF RHEUMATOLOGY


Ankylosing Spondylitis

“What a terrible thing, to doubt your own reality.”

"For me, the most important thing isn’t a narrative of triumph over adversity"

Sarah talks about AS


Lupus

"My hands died slowly,
with blood vessels surrendering
to the chill.  They turned grey, yellow, lavender,
dusky.  Dusky, like the sun had been setting
for hours and I only just realized it."

“I have lupus but lupus doesn’t have me.”


Gout

When having gout makes walking impossible: What it’s like

Juvenile Idiopathic Arthritis

"I remember the feeling of my joints being more 'present' to me than they ever had been before" - Megan

"I remember the feeling of my joints being more 'present' to me than they ever had been before" - Megan


Rheumatoid Arthritis


Scleroderma


Vasculitis

How do you eat an elephant?  “A small piece at a time.” That’s what I was told back in 2008 when I was first diagnosed with Wegener’s Granulamatosis.

How do you eat an elephant? “A small piece at a time.” That’s what I was told back in 2008 when I was first diagnosed with Wegener’s Granulamatosis.

My name is Ruth Stanton and I have Takayasus Arteritis.

My name is Ruth Stanton and I have Takayasus Arteritis.


Fibromyalgia & Chronic Pain

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Fibro: a poem

“…Watching your skin turn to hell and flake, away,
And your hair never cooperate anymore?
Seeing teeth trying to loosen and
Feeling like some days your eyesight was bad,
Or that your sense of time was starting to go?….”

Read more here

"One doctor held my hand and promised me I wasn't going to die that day.

I didn’t. But I didn’t get answers either."



Sjögren's Syndrome

“Sometimes your body starts acting off and we explain away all the reasons why. Well sometimes it's not just this or that, it can be more…”

Five men and women speak about living with Sjögren's

Hear their voices

A moment by moment account of getting through the day


Inflammatory Muscle Diseases

Chane's Polymyositis battle

 

Allergies

Allergic to Everything

Nicole on Sickboy Podcast talking about life with multiple anaphylactic food allergies