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STORIES OF NEUROLOGY 


Cerebral Palsy

"Really? She looks 'totally normal'"

Stories of parenting children with cerebral palsy

Disabled Dick: Sex & Cerebral Palsy

Andrew Gurza and his story on Sickboy Podcast

Don't assume I'm drunk

Matthew Corkum and his story of living with spastic cerebral palsy on Sickboy Podcast


Multiple Sclerosis

Walkers & Catheters

Ten Secrets Ardra would go back and tell her newly diagnosed self, and her story on Sickboy Podcast

Awakenings

Hannah Laycock's art collection on being diagnosed with MS


Myasthenia Gravis

365 Days of Myasthenia

Travelling & living a full life with myasthenia gravis


Epilepsy

What it's like to have a seizure

Carole's story on Sickboy Podcast

David B. and his graphic novel of living with a brother with epilepsy

David B. and his graphic novel of living with a brother with epilepsy


Tourette's Syndrome

F**king B*tch A**hole

Ken Shyvinsky and his story on Sickboy Podcast


Brain Injury

Struck by a Car

Jennifer's story of acquired brain injury on Sickboy Podcast

A carer’s perspective on brain injury


Bell's Palsy


Spinal Cord Injury

I Dove Into a Pool and Broke My Neck

Erin's story of becoming a quadriplegic on Sickboy Podcast


Aneurysm

The Battle for my Life

Game of Thrones actor Emilia Clarke writes in the New Yorker about her experience with a ruptured brain aneurysm and three brain surgeries by the time she was 25

 

Brain Tumors

Super booger or brain tumor?

Judith (previous VP Communications at Sickkids) & her journey with her brain tumor on Sickboy podcast

How do you talk to your kids when you have cancer?

Mark Schoneveld & his journey with oligoastrocytoma


Deafness

The Town of Laurent

Marvin Miller's dream of a deaf utopia on Only Human podcast


Muscular Dystrophy

The Patient Who Diagnosed Her Own Genetic Mutation—and an Olympic Athlete's

Jill Viles & her story in The Atlantic

" Our mouths and tongues are for tasting, but also for saying words, like 'I love you' "

A collection of stories and poems from Mattie JT Stepanek, a young boy with myotonic dystrophy


Guillain-Barré Syndrome


Strokes

You know what it feels like when you can't identify a snail?

Nina Mitchell and her story of having a stroke at 26, in The Atlantic

A World Without Words

Neurologist Jill Bolte Taylor and her story of having a stroke, on Radiolab podcast


Huntington's Disease

Based on a true story by neuroscientist Lisa Genova

Based on a true story by neuroscientist Lisa Genova

Dr Gilmer and Dr Hyde

On this fascinating episode of This American Life, Dr. Gilmer gets a job at a rural practice where the previous doctor has gone to jail for killing his own father. As he learns more about him, he tries to get to the bottom of how someone so loved can do something so bad…


Amytrophic Lateral Sclerosis (ALS) 

“My grandfather taught me to sign my name. My mother taught me to tie my shoes. My father taught me to throw a knuckle ball. Skills gone like a seeded lawn under spring snow.”   A collection of poems by Jay Curtis

“My grandfather taught me to sign my name. My mother taught me to tie my shoes. My father taught me to throw a knuckle ball. Skills gone like a seeded lawn under spring snow.”

A collection of poems by Jay Curtis

"There's no norm when it comes to Norm"

Patients and families share their stories of living with ALS


Migraines

The Hangover That Never Ends

Kate and her story of living with chronic migraines on Sickboy Podcast

 
My husband also has migraine, which is unfortunate for him but fortunate for me: perhaps nothing so tends to prolong an attack as the accusing eye of someone who has never had a headache. ‘Why not take a couple of aspirin,’ the unafflicted will say from the doorway, or ‘I’d have a headache, too, spending a beautiful day like this inside with all the shades drawn.’
— Joan Didion, "In Bed" http://eng121.net/online%20textbook/mixed%20methods/In%20Bed.pdf
 
In this work, Joanna Kempner “casts new light on how cultural beliefs about gender, pain, and the distinction between mind and body influence not only whose suffering we legitimate, but which remedies are marketed, how medicine is practiced, and how knowledge about disease is produced.”

In this work, Joanna Kempner “casts new light on how cultural beliefs about gender, pain, and the distinction between mind and body influence not only whose suffering we legitimate, but which remedies are marketed, how medicine is practiced, and how knowledge about disease is produced.”

Migraine visual aura spoils a summer afternoon